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Best Practices in Community Engaged Research (Version 2.0, November 2008)

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November 2008

1. A Different Look at Data Acquisition and Sharing – taking a broader perspective on data acquisition, measurement, and sharing within and without the academic institution

2. A Step Back: From Disease to Risk Factors –changing the primary care medical model focus from disease to the root causes of disease, i.e., risk factors

3. Building Trust – learning how to build internal and external trust with communities at various stages of the research process (initial conversations, IRB consent, defining research, defining community, etc.)

4. Collective Identification of a Research Agenda – understanding that a research agenda should be developed as a collaborative effort with community members

5. Communication and Education Types – identifying various modes of communication and education styles to implement with communities and different segments within communities

6. Community Etiquette – displaying culturally-appropriate manners when approaching and working with communities

7. Community Research Design Flexibility – being flexible in design given different research needs (Bryant “Cross of Gold” speech; one research design does not fit all

8. Community Worker Pay and Compensation – developing and using tools to promote and negotiate community worker compensation for services with a research study

9. Defining Your Community – thinking “outside of the box” when defining what constitutes a community

10. Don’t Reinvent the Wheel – relying on existing resources, information, and tools that have been effective in community engagement

11. Inclusive Research Planning – including community partners early in the process of research development and planning

12. Information Dissemination – using effective and innovative methods and strategies for communicating study findings, results, and implications

13. Innovative Recruitment – using non-traditional, culturally-sensitive, effective methods and strategies to recruit within communities

14. Inside the Community, Outside the Academic Health Center – taking care of the environment outside of the academic medical center (community sensitivity)

15. Insider/Outsider – understanding how the rules are different within a community if you are an insider (represented within and trusted by the community) or an outsider (not within the community and representing an external community perspective), and learning strategies to work with the community depending on your role.

16. Leveraging Methods of Engagement – understanding and implementing high-technological and low-technological methods of engagement

17. Linking Community Engagement and Political Support – understanding how garnering community and political support can lead to structural changes

18. No Helicopters Allowed – actively and consistently working with communities long-term; learning how to refrain from coming in and out of communities for singular gain

19. Practices Are Teams of People – understanding how to work with an entire practice staff, not just the providers

20. Sharing the Funds – understanding how, what, and when to communicate regarding to the availability, distribution, and sharing of research funds with communities

21. Starting Small Is OK – learning how to take small steps for large gain in building strong relationships with communities that lead to better research collaborations




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